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Join our public advisory panel and help shape the future research of the Cerebra Network.

The Cerebra Network are committed to involving people with neurogenetic syndromes and their family members or carers in research. As a panel member, the network will consult with you on matters ranging from individual projects, public events, and even the direction of the network as a whole. Your contributions will be central in making sure that the research being produced by the Cerebra Network is:

  • Important and worthwhile

  • Accessible

  • Appropriate

  • Shared with the right people to create meaningful change


We are still in the earliest stages of forming the panel. We want to enable people to get involved in a variety of ways, which might include attending workshops or meetings with research members, joining in with regular zoom meetings to discuss research priorities, or perhaps you would prefer giving feedback on discussions and documents in your own time via email.

If you would like to join our mailing list to be kept up to date on meetings and other ways to get involved and shape the network then please sign up with your name and email below, or if you have more specific questions then feel free to email Dr Kelly Wade at


Thanks for submitting!

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Click here to find out how your opinions could help our Warwick team develop better clinical tools
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