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Social and Emotional Wellbeing in Cornelia de Lange Syndrome

What is the study about? We want to learn more about social and emotional well-being in children and young people with and without neurodevelopmental conditions. We particularly want to understand behaviour, social functioning and emotional well-being and the relationship between anxiety and characteristics of autism as well as support the development of measures suitable for those who speak few to no words.
It is hoped this research will lead to improved understanding of social functioning and emotional well-being in children and young people and greater support for individuals and their families.

Who can take part? We are looking for children and young people with Cornelia de Lange Syndrome aged 5-30-years-old to take part, and autistic and non-autistic children and young people aged 5-15-years-old

What is involved? Fun tasks and activities that demonstrate a person's behaviours and social skills as well as eye tracking which will involve looking at some photographs on a computer. Parents/carers will be asked to fill out some questionnaires and complete an interview over the phone. Overall, the whole study will take 2-3 hours to complete and can be conducted over multiple sessions.  We are happy to travel to visit you in your hometown or you can visit us at the University of Surrey.

How can I take part? If you are interested, have any questions, or would like to discuss the study in more detail, please do not hesitate to contact Beth Jones at

Funded by:

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