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Funded by:


Behaviour in children (4-15 years) with CHARGE syndrome

What is the study about? The researchers would like to find out about a range of behaviours, skills and impairments individuals with CHARGE syndrome might experience including repetitive behaviour, hyperactivity, mood, challenging behaviour, social functioning, sleep and health. They are also interested in your family’s well-being, the impact that having a child with a disability has on the family and the impact of COVID-19 and related restrictions. If you want more information on how things are going then click the button below to download a copy of our research newsletter.

Who can take part? Parents & caregivers of children aged between 4 and 15 years with a diagnosis of CHARGE syndrome.

What is involved? Parents / caregivers will be asked to complete an online survey that should take around 45 minutes to complete.

How can I take part? If you are interested in participating then click the button below to find out more and register for the study using the survey password 'Cerebra', or if you'd like some more information then email Andrea Thomas:

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