Exploring Sleep in Neurodevelopmental disorders through Online and Remote Evaluation (eSNORE)
What was the study about? eSNORE was a direct study of sleep in children living in the UK with tuberous sclerosis complex (TSC).
Who took part? Children aged 4-15 years with a confirmed genetic diagnosis of TSC and their parents/caregivers.
What did the study involve? Children wore an activity monitor (actiwatch), day and night, across a ten-day study period. Caregivers were asked to record behaviour, seizure and sleep information every morning and evening for ten days using our eSNORE mobile app. Caregivers also completed sleep questionnaires and telephone interviews as part of this study.