Exploring Sleep in Neurodevelopmental disorders through Online and Remote Evaluation (e-SNORE)
What is the study about? A direct study of sleep in children living in the UK with tuberous sclerosis complex (TSC).
Who can take part? Children aged 4-15 years with a confirmed genetic diagnosis of TSC.
What does it involve? Children will be required to wear an activity monitor (actiwatch) for a period of ten days. Caregivers are asked to record behaviour, seizure and sleep information every morning and evening for ten days using our e-SNORE mobile app.
How can I take part? Please scan the QR code or follow this link, which will direct you to the online information sheet to take part. Password required on the opening page is cerebra.