The Checklist Project
What is the study about? The aim of the project is to develop a checklist for parents and clinicians to identify the causes of behaviours that challenge in children with a moderate-profound intellectual disability, enhancing assessment and treatment. The checklist can also be used over time to monitor causes and their ongoing impact.
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Who can take part? We will be seeking input from parents of children with moderate to profound intellectual disability, as well as clinicians who work with this group.
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What does it involve? The Checklist Project will consist of three phases:
This project is due to launch in January 2023 - check back for updates and news of how to get involved
A group of parents of children with moderate-profound intellectual disability and a group of clinicians working with children with moderate-profound intellectual disability will give feedback on the checklist.
A group of 70 parents will complete the checklist along with several validity measures and bring the checklist to an appointment with their paediatrician to assess feasibility.
A Checklist Development Group will meet once a month for eight months to discuss the checklist items and descriptions, the formatting, and the information manual.
